Posted September 09th, 2014
I received this email and I am volountarily posting it.
If anything touché (and not touchet) as long as you weren't referring to toupée (it maybe seems even better).
Did you read thoroughly, the article posted by H ("Fiorello Furioso")?
There is no question on the amount of donations (we will see the final balance next year. In 2013, AISLA declared a bit less than 2 million euro of incomes from donations).
The post is regarding to the intrinsic value of a gesture (donation) that maybe should be going in a different direction.
Just an example, without any order of importance and deliberately putting together people with different roles in society ....... here are some thoughts of a few "famous" people:
Pope Francesco: "A Christian knows how to give. His life is full of generous acts -but hidden- towards others."
Enrico Mentana: "I don't want to be a contrarian, or even worse, a "Mr. Know it all", and I don't want to minimize a campaign of awareness regarding the SLA. But I really don't like this Ice Bucket Challenge. If somebody else wants to do it, I'm happy for them. In my opinion, a journalist doesn't need an ice bucket to attract attention on a matter like that and it is strictly personal and private on how much he decides to contribute financially".
Emis Killa: "After I have been challenged and nominated by so many people, I have discovered that it is becoming a silly game, and, I accepted the challenge in a different way. This is my € 500 in donation".
And, I am stopping here, because I want to reflect on different consequences that a viral phenomena like the Ice Bucket Challenge can have on the distribtution of funds for medical research.
Vox.com is reporting an interesting chart which makes a comparison among the money raised with different initiatives and the number of deaths caused every year by the diseases from which the money has been raised (see chart below).
Differently from what you could imagine, there are no relations among the amount of donations and the number of deaths caused by the diseases.
"Breast cancer is "only" forth as in number of deaths, but it is first in terms of donations. Heart disease causes the majority of number of deaths per year, but the amount of donations is only third. SLA is fourth in donations but at the bottom as numbers of deaths per year".
And there is no difference between private and public donations: they both go in the same directions.
What's the reason? Marketing
But marketing is not the best way to allocate resourse for medical research.
The worst diseases are not necessarily the most "cool". Initiatives like the Ice Bucket Challenge are as much morally laudable as they are pragmatically questionable.
Certainly, they can raise a lot of money, but they can also divert the money from the real needings.
(by WIRED Massimo Sandal).